Thursday, February 28, 2008
I very consciously not dwell on Maeve having Down syndrome here on the blog, as I don't want it to define her. She has so much potential, and is such a delightful girl, I don't want her to be put in a box.
But I don't try to avoid the subject either, and welcome anyone to ask questions, or have a discussion about it. And Janet and I share our joys and frustration with it as it may come up in normal conversation.
So I guess as I plan some of these posts, feel free to post questions about it here, or shoot me an email. I suspect some of you may have questions, but are afraid to ask that it might embarrass us, or make us sad. Don't be afraid. We are tough people.
Some things I think will come up...
The recent bombings in Iraq, with suicide bombers with Down syndrome
The language of Down syndrome
Maeve's developement in comparison with other kids
Again, I hope you ask if you have questions about this subject.
Kisses to Maeve and Cecelia.
Cheche (Philippines, mommy to Raphael, ds)
Good talking to you today. You guys have a great blog. See you all soon. Tracy
Did Maeve have any of the more common heart or stomach complications?
Your videos are adorable, and I hope to hear from you soon!
There were some concerns with Maeve's heart initially, but it wasn't serious, and it corrected itself within a year. She did have a simple procedure last year to correct a kidney reflux problem, and spent a couple days at the hospital. Fortunately it was successful.
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